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(Photo: Courtesy of Merrell)

Sara Aranda鈥檚 Response to Her Breast Cancer Gene Mutation? Collecting FKTs.

The Merrell trail running athlete shares her experience of discovering a BRCA1 gene mutation鈥攁nd pursuing her dreams anyway

Published: 
from Trail Runner Magazine
A black and white photo of a woman smiling
(Photo: Courtesy of Merrell)

New perk: Easily find new routes and hidden gems, upcoming running events, and more near you. Your weekly Local Running Newsletter has everything you need to lace up! .

In Sara Aranda鈥檚 , one of her bullet points reads: 鈥淏RCA1 mutant.鈥

Along with being an endurance athlete, creative writer, and one of Merrell Test Lab鈥檚 newest athletes for 2024, Aranda has a known hereditary gene mutation that makes her more likely to develop breast cancer and a handful of other cancers throughout her life. By putting it in her bio and framing it as though she might be a superhero, Aranda is making space for this part of herself that often carries grief and fear, and turning it into a point of connection.

鈥淚 want to acknowledge it and hold space for it because that鈥檚 just the reality of me and my body, but I鈥檓 also doing all of this stuff anyway,鈥 says Aranda. 鈥淚 am this person, but I鈥檓 also a badass.鈥

On September 27, on a new Fastest Known Time (FKT), from . This accomplishment earned her a spot as a sponsored athlete with Merrell Test Lab for 2024.

(Photo: Courtesy Sara Aranda)

鈥楻unning Has Seen All of Me鈥

Based in Durango, Colorado, Aranda, 34, shifted to running trails from road and triathlon while in college at University of California Riverside, to explore the surrounding landscape and cope during a tumultuous time of her life.

When she was 20, her mom passed away from breast cancer. She was grieving, confronting mortality, seeking control, and navigating the soul-searching crises of young adulthood. Now, she lives with her husband, Patrick Hodge, and is a freelance creative nonfiction writer while working part-time at a local climbing gym.

鈥淚 had many trail runs where I was angry or crying or confused, or just very emotional. Running has seen all of me,鈥 says Aranda. 鈥淣ow, I鈥檝e been reaffirming that running can actually be a celebration: celebrating my body, where I am, how I feel, and all I鈥檝e learned throughout my life so far.鈥

Aranda鈥檚 mom, Cheryl Aranda, was 38 years old when she was diagnosed with breast cancer. Aranda was 12. 鈥淚 might not remember all the details,鈥 says Aranda. 鈥淚t was a seven-year period of it being there, in remission, and coming back.鈥 Cheryl was predisposed to getting breast cancer because she had the breast cancer 1 (BRCA1) gene mutation鈥攕ame as Aranda.

About BRCA Gene Mutations

There are two BRCA genes: BRCA1 and BRCA2. While everyone has these genes, , according to the National Cancer Institute.

Both men and women can carry the BRCA1/2 gene mutations. Reporting from the shows that women who have the inherited BRCA1 or BRCA2 (the other common breast cancer gene) gene mutation have more than a 60 percent risk of developing breast cancer in their lives. That鈥檚 compared to a 13 percent risk for women in the general population. Along with an increased risk of breast cancer, those with a BRCA1/2 gene mutation also have increased risk of ovarian cancer, pancreatic cancer, and melanoma.

Because the gene mutation is inherited, Aranda was at risk of having the same mutation as her mom, so at 26, she took a blood test, just to check. Her oncologist gave her the news over the phone鈥攚hile Aranda was on a road trip with Patrick, then still her boyfriend鈥攖hat she indeed had the BRCA1 mutation.

A black and white photo of a woman smiling
(Photo: Courtesy of Merrell)

鈥淚t was a moment where you鈥檙e suddenly just outside yourself,鈥 says Aranda. 鈥淲e stopped at this little diner off the highway in Idaho and ordered pancakes and just tried to have a quiet moment trying to process. I think it was Patrick鈥檚 30th birthday, so it was all mixed in like, 鈥極h, happy birthday! Your very serious girlfriend might be dead when she鈥檚 in her mid-40s.鈥欌

Aranda faced the terrifying thought that she might end up enduring everything she witnessed her mom go through. 鈥淵ou can get lost in that despair,鈥 she says. 鈥淎cknowledging it is how I deal with it. I focus on how I can nurture joy while holding space for this grief and despair.鈥

Making the Most of the Life We Have

Having seen her mom die at 45, and knowing she has the same BRCA1 gene mutation, Aranda is adamant about living the life she wants in the present. This has included spending several seasons working in Yosemite, testing her limits with a growing list of FKTs, and telling stories through her writing with essays and her monthly 鈥.鈥

鈥淪he moves through the world as a storyteller,鈥 says one of Aranda鈥檚 ReNewEarthRunning teammates and friend, . 鈥淪he鈥檚 always observing and processing things and everything she takes in translates into her writing. I think that鈥檚 part of why her writing is so beautiful.鈥

Aranda鈥檚 passion for running and resum茅 of FKTs led her to Merrell鈥檚 event in Steamboat Springs, competing for her 14th FKT. The route is steep, with approximately 2,200 feet of vertical gain in 3.2 miles. It switchbacks up the mountain, winding along the Thunderhead Trail under tree cover and occasionally crossing the exposed ski slope.

 

鈥淩unning can actually be a celebration: celebrating my body, where I am, how I feel, and all I鈥檝e learned throughout my life so far.鈥

 

鈥淚 really appreciated the shade when you were in the trees,鈥 says Aranda. 鈥淚t wasn鈥檛 hot, so I felt like I could push harder. Then, you would cross the ski slope and suddenly be exposed to the sun where it was really hot.鈥

Aranda wanted to put everything she could into her effort. Winning this meant more than just a sponsorship for her. It meant the ability to fully pursue her passions for running and writing, something she didn鈥檛 know how much time she had to do. The sponsorship offers a stable form of income that means she can fully commit to running and writing without the obligation of work in another industry.

Interventions for Survival

A common recommendation for women with BRCA1/2 mutations is to preemptively get a double mastectomy and bilateral salpingo-oophorectomy (surgically removing both breasts, fallopian tubes, and ovaries). These operations can reduce the risk of getting breast or ovarian cancer by 80 to 90 percent. Doctors usually recommend seriously considering these surgeries between 35 and 40, though Aranda鈥檚 looking at making a decision before 38鈥攚hen her mom and aunt (who also died of the gene with ovarian cancer) were diagnosed. However, they aren鈥檛 small operations.

Amber D鈥橝ngelo, a swimmer and performance dietician for , has the BRCA2 gene mutation and chose to get the preventative surgeries when she found out at age 40, in 2021. 鈥淵ou鈥檙e thrust into menopause overnight after having your ovaries removed and that changes how you feel,鈥 says D鈥橝ngelo. 鈥淵ou don鈥檛 feel quite yourself with the lack of hormones.鈥

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While the recovery times for the surgeries aren鈥檛 drastically different from any other major surgery, one of the biggest impacts is going into early menopause. This can cause all the classic menopause symptoms and particularly for athletes, may require more rest and recovery time. For D鈥橝ngelo, they were surgeries worth having to take control of her health.

Turning 35 in December, Aranda knows she鈥檒l have to make this incredibly personal decision within the next three years. 鈥淏ut a lot can happen in three years, right? Maybe the science wasn鈥檛 there for my mom and her sister, but it will be for me. You always cross your fingers,鈥 says Aranda. 鈥淚 want to keep the body that I鈥檝e always known. And the idea of going into medical menopause is terrifying because that brings its own risks like osteoporosis and heart disease. It鈥檚 like, do I want to risk my chances with cancer or bone and heart issues?鈥

Tied on the Trail

On the last switchback before the end, Aranda could see everyone at the top watching her ascend. She rounded the corner and avoided looking at anyone鈥檚 faces, just focusing on pushing herself and touching the gondola pole that marked the finish.

Aranda touched the pole and stopped her watch. 48:41. She鈥檇 made it, but she didn鈥檛 know if she鈥檇 won because she didn鈥檛 know anyone else鈥檚 time.

鈥淲ith any race or FKT, you see your time as you cross the finish line, and you know your position, if you did it or not,鈥 says Aranda. For this race, each athlete started separately and timed themselves to later upload to the FKT website. 鈥淭his was so up in the air. You had no idea.鈥

(Photo: Courtesy Sara Aranda)

A few minutes went by before someone asked Aranda her time. At that point, she discovered Siegle-Gaither had gotten 48:40.5. At the top of the ski hill, surrounded by yellow aspens, the two compared watch times. According to the watches, Aranda was half a second slower than Siegle-Gaither. However, Aranda鈥檚 watch didn鈥檛 track milliseconds, so her watch could have been rounding, and the times could be even closer. It was as close to a tie as you could get for a self-timed FKT, and Merrell hadn鈥檛 prepared for this possibility.

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鈥,鈥 says Ben Stark, Merrell senior brand marketing specialist. 鈥淲ho would have thought that was remotely possible?鈥

For two days after the tie, the two athletes waited for a decision from the admins at fastestknowntime.com and Merrell. 鈥淢y head was going everywhere,鈥 says Aranda. 鈥淚 hoped for the best. I hoped that the brand wouldn鈥檛 split hairs, but I also understood sometimes races have to split hairs.鈥

By Friday, September 28, they had a result: the time variation was within the margin of error of hand-timing, so the site officially recorded it as a tie for a total time of 48:41, and Merrell committed to signing both athletes.

Looking Ahead

Moving into 2024 with the Merrell sponsorship, Aranda hopes to continue nurturing joy in her life, sharing her story, advocating for others, and celebrating her body even when her genetics feel against her at times.

Since her run to Thunderhead, Aranda has already added four new FKTs to her growing list of achievements to accompany for , whose mission is to 鈥減rotect and heal the environment by restoring land to the stewardship of Tribal Nations and Indigenous leadership.鈥

鈥淚鈥檓 curious what [being sponsored] will actually feel like, but I鈥檓 excited to have fun with it,鈥 says Aranda. 鈥淚鈥檓 taking it as a chance to explore new avenues, collaborate with new people, and continue to work on the key aspects of myself and how that can be a platform to uplift others.鈥

For Aranda, this was one more step to pursuing her dream life, but in doing so, it also honors her mom鈥檚 legacy.

鈥淪he always encouraged [me and my siblings] to follow our dreams,鈥 she says. 鈥淪he was a musician and dreamed of being a rockstar. Knowing she never got to fulfill her dreams in the fullest of ways, I felt like chasing my dreams was the right path.鈥

Lead Photo: Courtesy of Merrell

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