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Chew participating in last year鈥檚 Dirty Dozen Race. Chew has spent the better portion of his life working towards his goal of biking 1 million miles.
Chew participating in last year鈥檚 Dirty Dozen Race. Chew has spent the better portion of his life working towards his goal of biking 1 million miles. (Photo: Michael Swensen)

Danny Chew Won’t Let Paralysis Keep Him From Riding 1,000,000 Miles

Cyclist Danny Chew was 783,000 miles into his quest to ride one million miles when he was paralyzed in a bike accident. Now he's determined to finish the job on a hand cycle鈥攁nd his friends at Pittsburgh's Dirty Dozen race are banding together to help him reach his dream.

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Chew participating in last year鈥檚 Dirty Dozen Race. Chew has spent the better portion of his life working towards his goal of biking 1 million miles.
(Photo: Michael Swensen)

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Cyclist Danny Chew completed his first 200-mile day when he was 10 years old. It was 1972. He rode an orange Schwinn Stingray with high-rise handlebars and a banana seat. He rode for 23 and a half hours through the rolling hills near Lodi, Ohio, through daylight and darkness, then limped into his family鈥檚 shag-lined Ford van, a small kid in cutoffs and sneakers. His back was sore but his heart singing. 鈥淚 felt satisfied,鈥 he says modestly. 鈥淚 knew that I鈥檇 done something pretty cool.鈥澛

For many people, the thrill might have been a passing thing, an evanescent boyhood delight. But Chew has Asperger鈥檚 Syndrome, and even though he is now 54, his giddy, kid-like fervor has never waned. It has instead distilled into a bright, lifelong monomania. He is arguably the most focused cyclist in the world. When Chew was 21, he resolved that he would ride a million miles before he died. He started logging his rides, obsessively, in hardbound notebooks. He kept records on how many thousand-mile weeks he rode, on his centuries and double centuries, as well as his streaks of 100-mile days. Graphs captured his yearly mileage and number crunching revealed that between 1978 and 1982 he rode an average of 14,867.0 miles a year. Neatly penned notes recorded strange adventures鈥攍ike the time he rode the long way from Pittsburgh to Cleveland, 182 miles, without drinking water or eating. He decided that he would never pursue a career, and that dating was not his cup of tea either. 鈥淚t鈥檇 be nice to have a relationship,鈥 he thought, 鈥渂ut then I鈥檇 have to get a job. She鈥檇 want kids. My riding time would go down, and I鈥檇 end up resenting it.鈥 聽

Chew lived with his mom. He remained a virgin until he was 38. He became the world鈥檚 greatest cheapskate, subsisting on little more than stale bread and expired jars of mustard, and he rode, fast. Chew completed the Race Across America eight times and won it twice, in 1996 and 1999.聽

Chew recovering in Chicago.
Chew recovering in Chicago. (Michael Swensen)

What Chew is most famous for, however, is an annual post-Thanksgiving bike ride that he helped launch on a snowy day in Pittsburgh in 1983 and has coordinated solo since 1986. The Dirty Dozen climbs 13 of greater Pittsburgh鈥檚 steepest hills, with riders racing the ups and coasting the downs. Eleven-time winner Steve Cummings calls it a quintessentially 鈥淐hewish鈥 event. 鈥淗e picks the worst weekend to do it,鈥 Cummings explains, fondly. 鈥淭he weather is horrible, and he never gets any permits鈥攈e just shows up and starts it.鈥 聽

Cycling Toward Recovery

This year鈥檚 annual Dirty Dozen race in Pittsburgh with raise money to help with Chew鈥檚 recovery. This year鈥檚 Dirty Dozen will raise money for Chew, the event鈥檚 longtime coordinator and guiding spirit.

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The 34th Dirty Dozen, set for Saturday, November 26, will draw about 300 riders and will also, tragically, be a fundraiser for Chew. On September 5, he suffered a life-changing accident. While out for a ride in the green countryside in eastern Ohio, where he was visiting friends, he crested a gentle hill and then began descending at a ho-hum 20 or 22 miles per hour. It was a placid day鈥攕unny, with no wind. He and his training partner, Cassie Schumacher, were chatting when suddenly Chew felt dizzy. 鈥淗e veered left,鈥 Schumacher says, 鈥渋nto a ditch, a typical drainage ditch with high grass, and I never heard any screaming. He never lost consciousness, but he hit his head and he just lay there, face down, saying, 鈥業 feel freaky. I can鈥檛 feel my legs. Am I still part of the bike?鈥欌澛

He was 783,000 miles into his million-mile quest. 聽聽


It鈥檚 early October now, and Chew is lying in his bed at the Rehabilitation Institute of Chicago, reckoning with the cold reality that he is now paralyzed from the waist down, with drastically decreased abdominal function and also a reduced ability to curl his fingers and grip. The accident broke his neck and irreparably bruised some of the roughly one trillion nerves in his spinal cord鈥攏erves that simply don't regenerate with the vigor of other tissues.聽

鈥淚t鈥檚 a good thing I don鈥檛 have a loaded gun or Dr. Kevorkian with me,鈥 he says, his voice nasally and flat as I arrive for a three-day visit. 鈥淚t鈥檚 a lot to take鈥攖o give up that sense of freedom that comes with riding a bike.鈥 聽

Typically a dry-eyed stoic, Chew is now weeping whenever the Dirty Dozen comes up. 鈥淎 lot of people have children,鈥 he says, 鈥渂ut the Dirty Dozen is my kid, and it鈥檚 all grown up now, and I鈥檓 so proud. I鈥檝e had people come up to me after the ride and say, 鈥楾hanks for the greatest day of my life.鈥 I give these people a goal鈥攖o finish every hill.鈥澛

Still fresh from the accident, Chew is now almost wholly dependent on the rehab staff: moving him from the bed requires two caretakers, who wriggle him into a sling attached to a small crane that hoists him up before lowering him down into his wheelchair. Still, he has a new goal: he wants to complete his million-mile quest on a hand cycle. 鈥淚f I could ride 200 miles a week, 10,000 miles a year,鈥 he says, 鈥淚 could do it.鈥 聽

His physician, Elliott Roth, the chair of Physical Medicine and Rehab at RIC, has warmly embraced Chew鈥檚 mission, saying, 鈥淚 don鈥檛 think it鈥檚 impossible at all. Danny鈥檚 got a lot of things working against him, but 50 percent of people鈥檚 outcome is related to their own determination.鈥 Meanwhile, there are so many competitive hand cyclists with Chew鈥檚 level of disability (technically speaking, he is afflicted with T1 quadriplegia) that an entire division, Class H2, is reserved for them in international Paralympic races. The H2 world champion鈥42-year-old former Team USA wheelchair rugby player Will Groulx鈥攔ides 180 or so miles a week.聽

Danny Chew, center, with his siblings.
Danny Chew, center, with his siblings. (Courtest of Carol Perezluha)

On this crisp fall morning in Chicago, however, Chew doesn鈥檛 even own a hand cycle yet. He is moving through the hallways in a large, clunky, high-backed wheelchair designed to be pushed from behind, and when his physical therapist steps into the room, asking him to self-propel that chair for six minutes, he is jittery, terrified. 鈥淪ix minutes?鈥 he says. 鈥淚鈥檓 going to be exhausted.鈥澛

Chew鈥檚 neck is still broken and braced. The shoulder muscles surrounding his broken neck are taut. His hands cannot grip very well and鈥攚orst鈥攈is newly paralyzed body is not effectively regulating his blood pressure. 鈥淏efore,鈥 Roth says, 鈥渢he muscles in his legs pumped blood up into his heart. Now that鈥檚 not happening, and his body is adjusting to the change.鈥 聽 聽

Chew begins pushing the wheelchair down the corridor, and it鈥檚 a bit agonizing to watch. He is a world-class athlete; now he is moving with the weary doggedness of a 90-year-old in a nursing home. He is gritting his teeth and grimacing, and the wheels of his chair are not quite rolling, but rather eking forward in tiny, spasmodic lurches. The discrepancy between past and present is so profound, and so humbling, that it almost seems like giving up would be the most graceful course. But Danny Chew is used to racing through the night on three hours鈥 sleep. He鈥檚 crossed the plains of Arkansas at 2 a.m., riding into the wind with his neck aching and spittle on his face, and now he knows that only by resorting to his greatest strength鈥攈is focus鈥攃an he lift himself out of despair. He keeps pushing the wheelchair. Then, one minute and 50 seconds into the session, he stops. He is ashen and afraid that he will pass out. When the PT takes his blood pressure, it is 81 over 52. Later, after she bends to the floor with a tape measure, she announces that he has covered 46.9 feet. 聽

鈥淚鈥檓 really tired,鈥 he says. 鈥淚鈥檓 so tired right now that I could fall asleep.鈥 The PT rolls him back to his room. He鈥檚 airlifted back into bed, and I stand over him as he nods off. His body is long and lean under the sheets鈥攄evoid of body fat, ripped. And now his legs do not operate. Listening to the rise and fall of his breath, I feel nothing but mournful.


Life is complex, though. Many times during my visit, Chew is all lit up鈥攂right-eyed, zany, and on. My second day there, he subjects me to what he calls his 鈥淩TP鈥 mode of conversation, short for 鈥淩andom Thrust Process,鈥 asking me scores of questions鈥攁bout my relationship history, my shoe size, my political views, my exercise regime鈥攁nd scarcely ever awaiting an answer. He says he gets his eccentricity from his late father, Hal, a special-education Ph.D. and a proud freak鈥攁 vegetarian, a yogi, a devotee of Transcendental Meditation, and a man whose shag-lined Ford van bore a handmade wooden trailer capable of towing 13 bicycles. Hal Chew, he says, was a sort of guru. He was beloved by every hitchhiker he picked up on road trips, and in his basement, hanging barbells from two-by-fours, he built a bare-bones gym聽that carried his two sons to cycling prowess. (Danny鈥檚 older brother, Tom Chew, was a member of聽the U.S. Olympic development team in the 1980s.)聽

The talk turns to romance. Chew tells me that his first kiss came when he was 27鈥攁nd that he bowled his date over. 鈥淪he got down on her knees, this beautiful woman,鈥 he tells me, 鈥渁nd she says, 鈥楧o you want to make love?鈥 I said no鈥攏o way. I love being different from the masses, and being a virgin was just another way I could be different.鈥澛

My second day there, he subjects me to what he calls his 鈥淩TP鈥 mode of conversation, short for 鈥淩andom Thrust Process,鈥 asking me scores of questions鈥攁bout my relationship history, my shoe size, my political views, my exercise regime鈥攁nd scarcely ever awaiting an answer.

When Chew was 38, radio shock jock Howard Stern invited him on air. The segment was entitled 鈥淧ick the Virgin.鈥 Stern shouted at Chew: 鈥淵ou鈥檒l never get a woman! You鈥檒l die a virgin!鈥澛

鈥淭hat motivated me to spite him,鈥 Chew says. 鈥淲ithin four months, I was in Oregon, living on a houseboat with this woman, and it was really nice. Whenever I came back from a ride in the rain, she鈥檇 have put warm blankets out for me.鈥 The relationship was brief, and Chew doesn鈥檛 linger on it, reverting, instead to RTP mode, delivering me advice about matrimony鈥斺淣ever marry anyone before you鈥檝e lived with them for three years!鈥濃攂efore segueing into personal finance.

鈥淣ever ever eat a meal in a restaurant!鈥 he says, shaking his index finger at me. 鈥淚f you leave a two-dollar tip鈥攖hat鈥檚 money that could be invested. And when it comes to cutting your hair, just buy a $20 clipper from Wal-Mart. How much talent does it take to shave your head bald?鈥 The man is resolute about living life on his own terms.


Weeks pass. On Facebook, Chew鈥檚 older sister, Carol Perezluha, a professor of math at Florida鈥檚 Seminole State College, posts a video of her brother being rolled along a Chicago bike path looking out on Lake Michigan. He鈥檚 elated in the clip, saying, 鈥淭his is the furthest I鈥檝e been out on the wheelchair since I was hospitalized.鈥 An accompanying photo shows him canting his feet skyward in his chair, lakeside, so he can regulate his low blood pressure. The blood pressure remains a concern. It is still erratic. 鈥淪ometimes it gets so low he blacks out,鈥 his sister tells me. Once it spiraled聽so high that a host of caregivers rush toward his bed, hovering. He is also having trouble regulating his body temperature. Sometimes, even after he asks aides to bring him four blankets, his teeth chatter as he shivers in his bed.聽

Danny with his sister Carol this fall in Chicago.
Danny with his sister Carol this fall in Chicago. (Courtesy of Carol Perezluha)

Pre-accident, Chew suffered from occasional lightheadedness. The undiagnosed condition caused his crash. Is he fated to have a worse case of orthostatic hypotension鈥攑oor blood pressure regulation鈥攖han most paralyzed people? Dr. Roth doesn鈥檛 think so. 鈥淗is problem is very common for patients with spinal injuries,鈥 Roth says. 鈥淚t鈥檚 something that over time he can manage, by wearing tight stockings, for instance, and abdominal binders.鈥 聽

Still, for Chew's family鈥攁 loving group who once spent summer weekends together, riding鈥攖he crash is a nightmare that has thrown his two siblings into a search for a wheelchair-accessible van, handicapped-friendly housing, and ongoing care. His sister tells me that their mother, now 84, has been in 鈥渁n awful state鈥 of late. 鈥淓very day, she tells me she wishes it didn鈥檛 happen. She鈥檚 become disoriented.鈥 聽

There are promising signals too, though, and when Chew phones me (the calls come in at odd hours: 6:48 am, 10:11 p.m.), his news breaks are triumphs: 鈥淚 can transfer myself out of bed now,鈥 he says. 鈥淚 rode my wheelchair nine laps through the hallways. It鈥檚 nineteen laps to the mile. I did the hand cycle for an hour.鈥澛

A plan gels for his release. He鈥檚 slated to leave RIC on December 5, and this winter he鈥檒l live with a friend in eastern Ohio. This friend, it so happens, owns a gym, and Chew is already looking forward to the track there.

On November 14, his physical therapist, Kate Drolet, tells me, 鈥淒anny鈥檚 improved immensely. He鈥檚 got a motorized wheelchair now and he鈥檚 completely independent on it. He goes all over the floor by himself, and after the Cubs won the World Series, we went to the victory parade. Even in the crowds, he didn鈥檛 need any help navigating. He is one of the most motivated patients I have ever seen. He is very intent on setting personal goals. He loves numbers.鈥澛

A plan gels for his release. He鈥檚 slated to leave RIC on December 5, and this winter he鈥檒l live with a friend in eastern Ohio. This friend, it so happens, owns a gym, and Chew is already looking forward to the track there鈥攊t鈥檚 nine laps to the mile. Meanwhile, Pittsburgh firm聽Desmone Architects has stepped forward, offering to redesign the family's home to make it suitable for Danny and his aging mom. The construction will cost over $100,000. 鈥淏etween Danny鈥檚 mind and Mom鈥檚 body,鈥 Carol Perezluha聽says, 鈥淚 think they can do it.鈥澛

Dr. Roth predicts that Chew should be able to get out on the roads, on a hand cycle, roughly a year from now, and a Pittsburgh friend is standing by, ready to serve as Chew鈥檚 coach. Attila Domos is a paraplegic. A 48-year-old onetime bodybuilder who fell from a ladder in 1993, Domos handcycled 407.7 miles inside 24 hours last August. When I call him, he is effusive with praise for Chew. 鈥淒anny trained me,鈥 he says. 鈥淗e told me that when you鈥檙e doing a 24-hour-ride, the night goes on forever. And he was right.鈥 聽

Another of Domos鈥檚 remarks lingers most, though. 鈥淩ecovery has almost nothing to do with how hard you work,鈥 he tells me. 鈥淎fter my accident, I stood for three or four hours a day, hoping that feeling would come back to my legs. It never did.鈥 聽聽

What if Danny Chew doesn鈥檛 recover enough to hand-cycle great distances? I ask him. 鈥淭hat鈥檚 not an option,鈥 Chew says. 鈥淚鈥檝e already ridden the wheelchair half a mile, and Attila tells me that translates to three miles on a hand cycle. He said he hates wheelchairs鈥攖hat he鈥檒l never do another marathon in a wheelchair. 鈥淟ook, I鈥檓 just at the beginning of my recovery. I鈥檒l get there.鈥

Lead Photo: Michael Swensen

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