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Tapeworms Are Real. I Had One And So Could You.

Robert F. Kennedy Jr. told a court in 2012 that doctors found a parasite in his brain. There's a聽one-in-eight chance you might have something similar. I've had one, too.

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(Photo: JUAN GARTNER, Getty)

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Tapeworms have been making headlines ever since an investigation by turned up a deposition Robert F. Kennedy Jr. gave in 2012. In it, the independent candidate running for president claimed doctors found a one inside his brain. Infectious disease experts and neurosurgeons that the Times spoke with agreed that it was likely a common pork tapeworm. Or rather, a cyst created by pork tapeworm larvae.

I鈥檓 particularly interested in this topic because I, too, had a tapeworm. How do you catch such an infection?

I called Philip K. Budge, Associate Professor of Medicine at Washington University in St. Louis, to find out. Budge sees patients with parasite infections in the university’s infectious disease clinic, and conducts research into parasitic worms in Africa. He also helped the Centers for Disease Control (CDC) investigate and respond to parasitic diseases in his former role in the Epidemic Intelligence Service.

鈥淚n areas where pork are infected with Taenia solium [the technical name for the pork tapeworm], if you eat undercooked pork, you get a tapeworm in your gut,鈥 Budge says. 鈥淗aving a tapeworm in your gut isn鈥檛 a pleasant thought, but it usually doesn鈥檛 cause us any trouble.鈥

I don鈥檛 know where I got mine. Budge asked me if I鈥檇 ever eaten undercooked pork, beef, or freshwater fish. I have, often in parts of the world 聽I once ate sketchy sushi on a barge floating near an open sewer in Havana, Cuba. If I had to pick a favorite food, it would be something grilled on a street in a developing country.

Like most people, I didn鈥檛 know I had a tapeworm until it died, and I passed the two-foot long worm in a bowel movement. Subsequent tests turned up no further signs of infection.

More than one billion people worldwide have some sort of worm infection. (Stocktrek Images/Medical Illustration, Getty)

Budge says that鈥檚 a common course. Tapeworms, whether they鈥檙e of the variety that use pigs, cattle, or fish as an intermediary host, don鈥檛 tend to cause negative or even noticeable impacts in the human body.

鈥淭he vast majority of people just pass the worm when it鈥檚 dead and then they鈥檙e done,鈥 says Budge. 鈥 worldwide have some sort of worm infection; it鈥檚 not a big deal.鈥

鈥淲here we do see trouble is when people poop out tapeworm eggs,鈥 Budge says. So this is where we can start talking about RFK Jr.鈥檚 brain worm.

Budge is dismissive of media reports that exaggerate the risks associated with infection, or which artificially boost the rare incidents in which a human may be infected by multiple worms at once. The doctor says there鈥檚 absolutely no need for parasite cleanses or other wellness cures that claim to remove or prevent parasites.

A worm parasite can鈥檛 reproduce inside a person, according to Budge. If you鈥檙e a frequent traveler, and you happen to ingest larvae and develop a tapeworm or roundworm in your gut, then that’s the only worm that will develop from that infection.

鈥淚t has to have some stage of its lifecycle where it leaves and is then reintroduced [to a human host],鈥 he says. 鈥淧eople have these terrible thoughts that worms are going to burst out of them Alien-style. That does not happen. You pick up a worm while you鈥檙e traveling, it lives out its normal life, dies, and then goes away. You鈥檙e cured.鈥

His biggest piece of advice? 鈥淚f you pass a worm, don鈥檛 freak out,鈥 says Budge, who says he spends more time convincing people that they shouldn鈥檛 be worried about parasites than he does treating them.

鈥淲here we do see trouble is when people poop out tapeworm eggs,鈥 Budge continues.

So this is where we can start talking about RFK Jr.,鈥檚 brain worm, which it appears wasn鈥檛 a worm, but rather worm larvae. Budge says that larvae 鈥渂low up a bubble鈥 to 鈥渕ake room for themselves鈥 after migrating through the blood stream and infecting a host鈥檚 muscle or brain tissue, forming a cyst.

But you don鈥檛 get the cyst from eating undercooked pork.

鈥淭o get the cyst, you have to eat something that鈥檚 been contaminated with eggs from someone else鈥檚 poop,鈥 he says, meaning human poop, not animal poop. Which is why I developed a worm rather than a cyst鈥擨 ate undercooked meat, not human feces.

While no one intentionally eats human feces, it can contaminate food through unwashed hands or unsanitary crop fertilization practices.

鈥溾 worm that got into my brain and ate a portion of it and then died,鈥 The New York Times reported that Kennedy stated in a deposition. Kennedy went on to associate the alleged worm with short-term memory loss, longer-term memory loss, and cognitive problems. His campaign declined a request from the paper to release the candidates鈥 medical records, but Kennedy did challenge his rivals鈥擠onald Trump and Joe Biden鈥攖o a sort of worm off.

鈥淚 offer to eat five more brain worms and still beat President Trump and President Biden in a debate,鈥 . 鈥淚 feel confident in the result even with a six-worm handicap.鈥

Budge says that tapeworm larvae don鈥檛 actually eat any of the host鈥檚 tissue. They just absorb nutrients, and that the fluid inside the cyst they create pushes the other tissue out of the way.

鈥淲hen you look at a three-dimensional image of somebody鈥檚 brain with neurocysticercosis [the technical term for tapeworm larvae infecting a brain], it looks like Swiss cheese,鈥 Budge says. 鈥淚t鈥檚 terrifying to look at because it looks like somebody鈥檚 just punched out holes in somebody鈥檚 brain, but the brain tissue hasn鈥檛 been damaged, it鈥檚 just been pushed aside.

Budge explains that, when the larvae die and the cyst collapses, it can leave behind minor calcification and scar tissue. While neither the cyst nor its remnants impair mental function on their own, a really bad infection with numerous cysts in the brain can lead to seizures.

The cysts themselves inhibit the body鈥檚 immune response and don鈥檛 create inflammation on their own. When the larvae die, and the cysts collapse though, that inflammation inhibitor also disappears. Inflammation is the body鈥檚 response to infection, but if it applies pressure inside the brain, it can cause seizures.

“If you have one cyst in there, and it dies on its own, and the inflammatory response doesn鈥檛 provoke a seizure, then you鈥檙e not going to have problems from that in the future,鈥 Budge explains. Tapeworm cysts shouldn’t cause memory loss or cognitive problems, according to his experience.

Budge says that a lot of tapeworm infections, like mine, are caused by 鈥渁dventurous eating.鈥 So, his advice is clear: 鈥淒on鈥檛 be an adventurous eater.鈥

You should also wash your hands before touching food, drink bottled or filtered water, and make sure any meat or fish you consume is thoroughly cooked.

鈥淧eople usually know when food seems a little sketchy,鈥 says Budge. 鈥淒on鈥檛 eat that.鈥

Lead Photo: JUAN GARTNER, Getty

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