The Paraplegic Marathon Man
At the 2019 Los Angeles Marathon, Adam Gorlitsky will set out to become the first American paraplegic to walk 26.2 miles鈥攁nd bust his British rival's 36-hour time in the process. But his real dream is to bring assisted mobility to people with disabilities.
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When he was 19 years old, Adam Gorlitsky never wore his seat belt because鈥攚ell, what could possibly happen? Life was good. He was a sophomore at the University of South Carolina and a fit guy. In high school, he鈥檇 run a 4:50听mile and played varsity basketball. Now he was a pickup-game star, a talented outside shooter, a business major, and an esteemed brother at Sigma Chi. On the day it happened鈥擠ecember 30, 2005鈥攈e鈥檇 just signed the lease on a sweet new apartment.
Gorlitsky moved furniture into the place that day, and then, just after nightfall, climbed into his dad鈥檚 Chevy Tahoe to make the two-hour journey home from Columbia to his parents鈥 house in Charleston. He was sober, but he was also weary, and he says that when he was careening along Highway 26 at 80 miles per听hour, he nodded off for a second. An instant later, his car was rolling down the grassy slope of the median. It听smacked sideways into some trees. The accident threw听Gorlitsky around the inside of the vehicle until he lay, finally, in the back seat, spitting up blood. He was unable to move. Soon afterward听he was airlifted to the Medical University of South Carolina, in Charleston, where X-rays revealed that he鈥檇 suffered a T9 spinal fracture. He was paralyzed from the belly button down.
By the time Gorlitsky got into rehab, he had lost 45 pounds from being on a ventilator and still had a tracheotomy tube in his throat. He was so weak that he needed to be lifted into his wheelchair. In a flash, his unformed young life had been inflected with a question he never anticipated: how could he become an adult听now that it seemed he would never walk again?
But beginning on March 22, he plans to walk 26.2 miles. At the Los Angeles Marathon, Gorlitsky, now 32, will attempt to become the first American paraplegic ever to walk a full marathon. Relying on an $80,000 robotic exoskeleton, he鈥檒l commence the race in the dark, after 10 P.M., more than 24 hours before any other competitors, and then hobble out of Dodger Stadium and along Sunset and then Hollywood Boulevards.
American marathons have been including wheelchair athletes for more than 40 years, but Gorlitsky鈥檚 26.2 debut comes as the races are growing more welcoming to athletes with disabilities, and also more lucrative. At next month鈥檚 Boston Marathon, wheelchair athletes will vie for $125,000 in prize money, up from听$84,500 in 2018. (The total purse of last year鈥檚 race was $830,500).听听
Racing the Los Angeles Marathon in an exoskeleton, Gorlitsky will only be chasing after glory. If he finishes in less than 36 hours and 37 minutes, he鈥檒l become the fastest paraplegic marathoner in the world.
So听is this another feel-good inspirational story about a disabled guy?
Yes. And also no. If only it were that simple.
鈥淲hen you鈥檙e permanently disabled,鈥 Gorlitsky says, 鈥測ou wake up every day battling against two things鈥攜our spinal-cord injury听and also society鈥檚 perception of who you are. You鈥檙e constantly playing from behind.鈥
Gorlitsky had an uphill road after the accident. He finished nine weeks of rehab, then graduated from USC a year behind schedule. But when he tried to launch a career, it didn鈥檛 materialize. He was passed over for an internship with a TV production company because, he thinks, he couldn鈥檛 climb the stairs to the office. He produced some short films, including a moody and ambient music video for the Charleston roots-gospel rock ensemble . He set out to create a feature film, but the only money he made came from working听for his parents鈥 successful mail-order business, , which sells holistic products for dogs and cats. 鈥淲hen I posted pictures of myself on Tinder,鈥 he says, 鈥淚 cropped out my wheelchair. I didn鈥檛 want people to see it.鈥
But then, in 2015, Gorlitsky says, came the moment that would lend him both agency and self-esteem. At a spinal-cord-injury clinic in Charleston, Gorlitsky tried out a space-age apparatus鈥攖he ReWalk exoskeleton, designed to let paraplegics walk again. For the first two weeks, all he could do in the ReWalk was stand there. The stabilizing muscles in his core, unused for a decade, were so taxed that they would ache deeply for days, steeping him in a pain he鈥檇 never known as a high school runner. Ten weeks passed before he could walk听a city block. Still, he鈥檇 regained a part of his old self. 鈥淪uddenly,鈥 he says, 鈥淚 went from a seated four foot nine听to a standing six foot one.鈥
Released in 2011听after years of development by Israeli engineer Amit Goffer, the 听is an ungainly 60-pound assemblage that consists of two heavy, black leg braces, each containing a whirring motor. Each motor angles forward the hip that it鈥檚 attached to, bringing the leg along with it. You activate the motors by throwing your weight forward onto low crutches, thereby tripping a sensor in the ReWalk.
Wearing the ReWalk, he felt听he鈥檇 regained a part of his old self. 鈥淪uddenly,鈥 he says, 鈥淚 went from a seated four听foot nine听to a standing six foot one.鈥
The ReWalk is slow鈥攔arely much faster than one mile an hour. But听soon after Gorlitsky took his first few steps, lurching like a landlubber on a heaving boat, he hatched a new career plan. 鈥淚nstead of trying to make a movie about someone鈥檚 else鈥檚 life,鈥 he decided, 鈥淚鈥檒l turn my own life into a movie.鈥
L.A. will be Gorlitsky鈥檚 35th road race. Three years into his racing life, he鈥檚 already walked 10K portions of both the Marine Corps Marathon and the Walt Disney World Marathon, landing himself on the听CBS Evening News and ESPN SportsCenter. He鈥檚 well-known in his native Charleston, and once, when he found himself with a dying ReWalk battery at a 5K on the South Carolina shore, a half-dozen soldiers came to his rescue and carried him atop their shoulders a quarter mile to the finish.
The metaphors surrounding Gorlitsky鈥檚 journey are monumental, and he works it. In 2016, he abandoned film and launched a nonprofit, , with a proclaimed mission of 鈥渋mproving the lives of the disabled community.鈥 I Got Legs has always been a one-man enterprise, but it now has a board of five directors, drawn largely from the Charleston business community, and a budget plan that prays for $150,000 in 2019, as compared to the $52,832 it reported on its most recent tax forms, which document 2017 revenues.
But what thrills Gorlitsky is storytelling and human drama. The stylish website of I Got Legs, shaped by Gorlitsky himself, highlights an 听campaign set up to raise funds to help other people with disabilities purchase assistive technology. The photos show Gorlitsky sitting in a wheelchair, then rising, half-bent, and finally standing erect, towering and sturdy, vanquishing frailty in his exoskeleton鈥攁s if, thanks to robotics, humans could evolve to a new plane of existence.
The first time听I reached Gorlitsky, on a late-night phone call in听November, I found him simmering with disdain for the man he calls his arch nemesis: , the 34-year-old Brit who ReWalked the London Marathon in 36:37 last April.
Like Gorlitsky, Kindleysides is paralyzed from the belly button down (his paralysis was caused by a brain tumor). Gorlitsky鈥檚 beef with him is that, on Facebook, Kindleysides said he finished in 27:30, a time that excludes numerous stops for battery changes and mechanical fiddling. 鈥淲hen I read his post,鈥 Gorlitsky said, 鈥淚 thought, Oh my God, that鈥檚 so lame! I told him, 鈥業f we to go by your logic, anyone could take breaks whenever they wanted, and it wouldn鈥檛 count toward their overall time.鈥欌
鈥淚 want to race this guy one-on-one,鈥 Gorlitsky said to me. 鈥淚鈥檓 thinking the New York Marathon next fall. I want it to be intense鈥攋ust like the World Wrestling Federation!鈥
Gorlitsky and Kindleysides stand together atop a tiny worldwide community of six or so exoskeletal long-distance racers, competing in a sport so nascent that it lacks codified timing standards. Can鈥檛 Gorlitsky just try to get along? He is, statistically speaking, the slower athlete: in his only half marathon, in Portland, Oregon, last year, he finished in just under 20 hours. Beyond that, Kindleysides presents himself as a soft-spoken guy. He鈥檚 a rising pop singer who recently joined Geri Horner, once Ginger Spice of the Spice Girls, as a singing judge on a season of the BBC One show All Together Now. 鈥淚 tried to be nice and polite with him,鈥 Kindleysides told me in December. 鈥淏ut he kept writing me on Facebook, saying things like, 鈥業鈥檓 going to kick your ass.鈥欌

Gorlitsky, it seems, is inclined toward the grand statement. On the phone听he told me, 鈥淚 Got Legs isn鈥檛 some pat-on-the-back nonprofit. I run it like a Fortune 500 company.鈥 He said that he sees himself as the social entrepreneur version of Amazon founder Jeff Bezos. He envisions building a Got听Legs! digital network built, as he puts it, 鈥渁round entertainment, retail, and fund-raising.鈥
But as the public face of U.S. exoskeleton walking, Gorlitsky hasn鈥檛 convinced everyone who has a disability. Bill Fertig, a paraplegic who serves as director of the New York鈥揵ased Spinal Cord Resource Center, argues that for most paralyzed people, ambulation is not a paramount concern. 鈥淲alking is overrated,鈥 Fertig says. Indeed, when the North American Spinal Cord Injury Consortium reported early this year on a survey of 1,800 constituents, it found that their principal hope was not to walk, but to restore bowel, bladder, and sexual function. The majority of paraplegics rely on catheters.
Gorlitsky听sees himself as the social-entrepreneur version of Amazon founder Jeff Bezos, building a听Got Legs! digital network built around “entertainment, retail, and fund-raising.”
Fertig blames the glorification of walking on well-meaning but clueless able-bodied types who use terms like 鈥渨heelchair bound.鈥 A former police officer who was injured in an off-duty motorcycle accident in 1999, he devotes his time to other pursuits: he swims and also water skis, using a padded extrawide ski topped by a metal cage for stabilization. Winters, he takes to the slopes on a sit-ski. 鈥淚 don鈥檛 have time to worry about walking,鈥 he says.
Fertig concedes that walking is good for the human body, pointing out that it鈥檚 crucial for bone density and bowel function. 鈥淲e鈥檙e meant to be upright,鈥 he says. 鈥淏ut exoskeletons are so expensive that I just can鈥檛 see them getting much play.鈥 Only about 500 ReWalks are in use worldwide. Other manufacturers also make exoskeletons, but they鈥檙e not as robust and race ready. ReWalk dominates a small market, and while the company does have plans to release faster units, few ReWalk buyers are eligible to be reimbursed by their insurance.
Fertig just doesn鈥檛 see the ReWalk changing the game for paraplegics. 鈥淭his thing,鈥 he says, 鈥渋s for the skydivers and the spelunkers of the disabled world.鈥
I arrive in Charleston in mid-December, on the eve of I Got Legs鈥 second annual gala, a road race. But this isn鈥檛 just another boring 5K鈥it鈥檚 a beer mile, a four-lap chugalug sprint of the city block surrounding .
Gorlitsky鈥檚 alluring race poster (an exoskeleton sporting Nikes) announces that it鈥檚 the Betty Carlton Beer Mile, a nod to his late grandmother, who was a chain-smoking roller-derby queen. There is even a Betty Carlton Beer Mile Queen, real estate agent and former TV reporter Sydney Ryan, who delivers just the right amount of ironic ohmygod squealing when a faux-solemn Gorlitsky crowns her with a tiara. Just under a hundred competitors, most of them around Gorlitsky鈥檚 age, and at least as many spectators have gathered not out of a piteous sense of obligation听but rather because, well, where else would a Charleston hipster quaff ales at 11 on a Saturday morning?
Everyone here is, it seems, a Gorlitsky fan, and he works the crowd with aplomb, grinning, dropping wry one-liners, pausing dutifully each time someone asks him to pose for a selfie. 鈥淗e鈥檚 got a really good cause,鈥 says Howard Thomas, a police officer working the scene. 鈥淲e see a lot of bad accidents, and it鈥檚 nice to see something positive come out of one of them.鈥
鈥淗e鈥檚 a good model to anyone in a wheelchair,鈥 says beer miler Thomas Sessions, an engineer who is paralyzed from the armpits down. 鈥淗e鈥檚 motivating me to become an activist and to think about getting an exoskeleton.鈥
When I join Gorlitsky out on the race course, shuffling beside him as he picks his way to a sub-one-hour mile, I find myself in the midst of a happy family drama. Gorlitsky鈥檚 dad is walking behind him, holding his hand at times, lest his son falls. Stan Gorlitsky, 69, was a veterinarian before he started Allergicpets.com, and in a thick accent redolent of his native New York, he tells me, 鈥淚 do this every race. Every race. And I have to train for this, you know. I鈥檓 on the treadmill five times a week. At my age, it鈥檚 a pain in the ass.鈥

鈥淚鈥檓 not drinking today,鈥 says Stan, who has three other sons, including one who鈥檚 living at home with Asperger鈥檚. 鈥淚鈥檓 the designated driver. If he slips and I don鈥檛 catch him, he鈥檒l go down like a cut tree. And it鈥檚 a bitch to stand him up again.鈥
Gorlitsky pokes his crutches forward, one at a time, as a handful of admirers fan out behind him, their own race long over as they sip beer.
We round a corner. 鈥淎ny tilts, any sand, any cracks in the pavement, any grates or walkways,鈥 Stan says, 鈥渇orget about it. I have to concentrate. A lot of times, I just tune out conversations.鈥
Today听he鈥檚 not missing much. After the second lap (and third beer), Gorlitsky says, 鈥淚鈥檓 already drunk!鈥 After the third lap, he says of his exoskeleton, 鈥淚 wouldn鈥檛 wear it on a first date. I鈥檓 a little self-conscious in it. It takes up a lot of space. But on a second or third date? Definitely!鈥
Just before Gorlitsky crosses the finish line, he allows himself to dream of next year鈥檚 beer mile. 鈥淚 want to have bands,鈥 he says. 鈥淚 want it to be a relay race, a festival. I want to make it a love letter to Charleston.鈥
Gorlitsky鈥檚 emergence as a public figure in Charleston was filled with sparkle and hope. In April 2016, Julian Smith, the longtime director of Charleston鈥檚 premier road race鈥攖he , a 10K that draws 40,000 racers each April鈥攚elcomed Gorlitsky into the event, even though he knew that the man would be out on the course听posing traffic issues for听much longer than the average runner. After Gorlitsky finished, in just under seven hours, Smith invited him to speak at a national conference for race directors. Gorlitsky, in turn, got a tattoo on his right arm that reads 鈥17,932鈥濃攖he number of steps his ReWalk took in the race.
But last year, Smith contracted glioblastoma, an aggressive brain cancer, and in听January听he decided to step down. Before the 2018 race, Gorlitsky locked horns with the race鈥檚 deputy director, Irv Batten, who (in the interest of time, permitting, and insurance issues) wanted him to race in a wheelchair. Gorlitsky refused鈥斺淚 probably dropped some f-bombs,鈥 he acknowledges鈥攁nd was ultimately picked up, ingloriously, by the race鈥檚 sweep van near the two-mile point, unable to complete the course in the three hours allotted all racers.
Batten declined to comment for this story, but when I visit Gorlitsky at the comfortable two-bedroom house he rents from his dad in the suburbs of Charleston, he has no qualms about describing his feud with another Bridge Run luminary, Marka Danielle Rodgers, a 62-year-old quadriplegic. Rodgers, a ballet instructor and disabilities advocate, has an incomplete spinal injury, meaning that she retains some motor skills and was able to finish the 2016 Cooper River race in just over two hours, using a less elaborate (but still uncommon) set of $20,000 mechanized leg braces made by the German company Ottobock. In 2017, she began to wonder what I Got Legs had actually accomplished, 18 months after incorporating as a 501c3.
鈥淲hat is actually happening with your foundation?鈥 she wrote Gorlitsky on Facebook Messenger in late November. 鈥淲here is the money going? Who are you helping?鈥
He wrote back, calling her 鈥減assive-aggressive,鈥 and said that her 鈥渆motional statements鈥 called to mind Donald Trump, who听both he and Rodgers abhor.
Rodgers is reluctant to criticize Gorlitsky, focusing her concerns instead on the ReWalk. 鈥淭o put it out there to the public that you can just go to your doctor听and get a scrip for this device and go walking鈥攖hat鈥檚 misleading,鈥 she says. 鈥淚t鈥檚 almost dangerous. It takes half an hour just to put a ReWalk on. It takes a lot of work to learn how to use one.听It鈥檚 very frustrating.鈥 And for people whose spinal injuries are incomplete, Rodgers says, a ReWalk won鈥檛 work. 鈥淚t鈥檚 jerky on the body. If I tried to use one, it could induce muscle spasms.鈥 听
Still, Rodgers鈥檚听principal question is a good one. What鈥檚 happening at I Got Legs?
Logistics will be complicated in L.A. Gorlitsky will need to travel the first 20 miles on the sidewalk鈥攐ver the cracked pavement and patches of sand that give his father, Stan, nightmares.
When Gorlitsky started the nonprofit, he hoped to help other paraplegics buy exoskeletons. Soon, though, he realized that the demand for such devices was low. 鈥淭hey鈥檙e too expensive,鈥 he says, 鈥渁nd they wear out after only a few years.鈥 Instead听he decided, 鈥淲e need to help others toward their own version of getting legs.鈥
In recent months, I Got Legs has helped promote a fund-raising dinner for a 13-year-old paraplegic girl who needs an elevator in her home. It also made plans to aid two other mobility-related campaigns:听One, set up by a Charleston physical-therapy student, aims to teach Ugandans how to build wheelchairs inexpensively. The other involves a disabled Ohio woman trying to scrape together $2,000 for a hand bike.
The latest tax documents of I Got Legs reveal that it received $38,117 in contributions in 2017, along with $14,715 in program revenues. Much of this went toward the 2016 Ford Explorer that Gorlitsky uses to drive around Charleston and to races. I Got Legs received a deep discount on the vehicle, along with a Braunability wheelchair ramp, from Charleston-based , which adapts vehicles for people with disabilities. As for the remaining contributions, 鈥渁lmost all came from sponsorships,鈥 Gorlitsky听says,听鈥渕eaning that a business contributes money and in exchange they receive signage or advertising at our events or on the car.鈥
Gorlitsky says that I Got Legs spent the sponsorship funds on two awareness programs: One is his own One Million Steps Tour, which sees him trying to log that many paces at road races (he鈥檚 currently up to 217,189). The second is what he鈥檚 dubbed the ReEnabled Racing Circuit, which includes the beer mile and two Charleston-area events that are not run by I Got Legs鈥攁 Turkey Day 5K听and a July Fourth听Firecracker Run.
Thus far, Gorlitsky says, about ten听athletes with disabilities have joined him鈥攊n wheelchairs, in leg braces, and wearing prosthetics鈥攖o compete in the ReEnabled Circuit. I Got Legs has not yet given money to any mobility-impaired individuals, though it plans to in 2019, through a Got Legs! Give Back Fund. It has, however, already launched a program, I Need Legs, designed to help disabled people raise funds. Last year, in its first effort, I Need Legs helped a Charleston-based blind woman鈥擥ina Applebee, a graduate student pursuing a Ph.D. in psychology鈥攔aise about $10,000 for a tiny home she described on her GoFundMe page as the 鈥減erfect fit for my blind feng shui.鈥 I Got Legs helped Applebee by, for instance, hosting a happy-hour fund-raiser at a local bar and introducing her to news reporters. 听听

Throughout 2018, Gorlitsky worked with a pair of Charleston consultants, Sandy Morckel and Frank Sonntag, whose outfit Solutions for the Greater Good helps nonprofits with organizational management. As Sonntag sees it, Gorlitsky is a 鈥渂ig thinker鈥 whose vision surpasses I Got Legs鈥 tiny budget, and who's already looking to fund stem-cell research and create an endowment. Sonntag would like to see I Got Legs focus on aiding the mobility impaired. But he tells me, his tone judicious, 鈥淎dam isn鈥檛 a pushover. He doesn鈥檛 just flatly follow our lead.鈥
Gorlitsky says he arrived at his $150,000 budget for 2019 with the help of Sonntag听and the board. Without divulging specifics, he claims he鈥檚 got some large donors lined up. 鈥淚鈥檓 into big rhetoric for sure,鈥 he says, 鈥渂ut people are starting to see that I鈥檒l live up to the rhetoric.鈥
鈥淔rom day one,听my philosophy has been:听You have to raise public awareness. From there, you can leverage fund-raising money,鈥 Gorlitsky says. 鈥淲e鈥檙e a content-driven nonprofit,鈥 he adds, alluding to the thousands of autobiographical videos he鈥檚 uploaded to Facebook and other platforms. 鈥淲e create content, and we leverage it to build community and educate people. I don鈥檛 give a shit about money. If your nonprofit places too much emphasis on giving money away鈥攚ell, then you鈥檙e just a GoFundMe. 鈥
On the morning after the beer mile, I join Gorlitsky for what is his听first marathon-training sesh鈥攁 ten-mile hand-bike spin through a quiet suburban neighborhood. He鈥檚 on the hand cycle; I鈥檓 on wheeled roller skis. As we glide along, he tells me that soon he鈥檒l be walking about ten听miles a week and also doing frequent hand-cycling and gym sessions. 鈥淚鈥檇 like to walk more,鈥 he says, before considering his training partner. 鈥淏ut I have to be mindful of my dad鈥檚 body, too.鈥
Stan has been training on the treadmill, and he says, 鈥淚鈥檓 99 percent sure I鈥檒l make it. Bottom line: I鈥檓 his roadie. He needs me.鈥
Logistics will be complicated in L.A. In December, Gorlitsky received a legalistic 11-paragraph letter from the Los Angeles Marathon office听green-lighting his participation but also making clear that its officials were not about to stop traffic for 30-plus hours. 鈥淵ou will start at the 32K mark at 6:30 A.M.,鈥 the letter reads. 鈥淵our walk to the start line is not sanctioned.鈥
In other words, Gorlitsky will need to travel the first 20 miles on the sidewalk鈥攐ver the cracked pavement and patches of sand that give Stan Gorlitsky nightmares. He鈥檒l move with an entourage鈥攁t least one ReWalk technician, a few supporters, and also a filmmaker, Caitlin Weiler, who鈥檚 including Adam鈥檚 journey in a documentary on her late father, a quadriplegic. Gorlitsky鈥檚 crew will carry some food and water on the back of his wheelchair.
Simon Kindleysides navigated London with a team as well. He did the last 18 miles of his marathon on sidewalks, alongside streets streaming with traffic. Which means that when Gorlitsky guns for Kindleysides鈥檚 record, he鈥檒l be ReWalking onto a level playing field. 鈥淚鈥檇 say I have an 80 percent chance of beating Simon鈥檚 time,鈥 he tells me. 鈥淚 ran a 4:50 mile in high school. I played varsity basketball.鈥
Gorlitsky questions Kindleysides鈥檚 claim to have moved along at a 62-minute-mile pace at the London Marathon. 鈥淗ow鈥檚 that even possible?鈥 he asks. Kindleysides says he told Gorlitsky, 鈥淟ook, every disabled person has different abilities.鈥

A ReWalk service engineer, Wai Li, sheds a little light on this question. 鈥淕orlitsky is not too smooth,鈥 says Li,听who walked the Portland half marathon beside him. As is true to a certain extent for all exoskeleton users, he says, 鈥淲hen Adam gets tired, he leans in many directions. He leans over the crutches so much. Supposedly, they are just there for balance, but his hands got bruised. In the end, he had to stop every block and rub them.鈥 Kindleysides, who is better able to recruit his core muscles, walked more upright. His hands were sore but not bruised after his marathon.
鈥淪imon has huge trunk control,鈥 Gorlitsky tells me at the tail end of my visit. We鈥檙e at his house, and he begins scrolling through his rival鈥檚 Facebook feed. 鈥淭here鈥檚 a lot of selfies,鈥 he says. 鈥淭here鈥檚 a boy-band thing going on. He鈥檚 got the tattoos, the hair.鈥
As I drive toward the airport, I remember something Gorlitsky said in an e-mail early on: 鈥淓very time I say the F-word to someone,鈥 he wrote, 鈥淚 do give them a big hug and tell them I鈥檓 sorry immediately after.鈥 Gorlitsky gets it. He鈥檚 young, and he鈥檚 had a life freighted with more frustrations and challenges than most. Perhaps it is only a matter of time before he learns to channel the frustration within.
Simon Kindleysides may already be there. When I call him to ask for his thoughts on Gorlitsky鈥檚 upcoming race, his voice is cheery as his kids squeal and cavort in the background. 鈥淗e says he鈥檚 going to beat me,鈥 Kindleysides says, 鈥渢hat鈥檚 he going to smash my record. Well听then, why doesn鈥檛 he just bring it on? Isn鈥檛 that what competition is all about? I wish him good luck.鈥